The Desmoid Project was launched in September 2023 in response to an urgent need for patients’ unmet advocacy services and resources. Founded for patients, by patients, this organization’s mission statement is to enhance the quality of life for desmoid tumor patients, their families, and caregivers through comprehensive support and advocacy by creating a roadmap, developing resiliency tools, increasing knowledge, and empowering patients to navigate and thrive with this rare disease.

The National Vehicle Residency Collective (“NVRC”) is a network of vehicle residents, social service providers, and legal experts joining together to support people living in their vehicles. Our goal is to honor and value the voices of vehicle residents, support their policy and service goals, and protect their legal rights. We believe that a key component of this work is to raise positive public awareness about people living in vehicles and vehicle residency.